Get involved: Continuing Healthcare Patient Experience Project

The aims of the project

At the moment there is not one way of measuring how a person, who is receiving Continuing Healthcare (CHC) support, feels about the care and support they are given. 

This care and support includes: 

  • Through the CHC process
  • The support they are given by their local CHC team
  • The care they receive from the provider of the care, such as the care home with nursing or paid carers

The main aim of the project is to develop a way of measuring a person’s experience of CHC including the process, the care they receive, and the service they receive from local CHC teams in the NHS.

It is also very important that these measures can be used by NHS staff, other health professionals and care providers to improve quality and support people to have a better experience of the care they receive as well as the CHC process.

What have we been doing?

We asked people to talk to us about their experience of Continuing Healthcare and held in-depth interviews with a number of patients, carers and their families. We have also met with staff and local voluntary groups who work in Continuing Healthcare to ask for their views of the project.  We found that there were common themes in what people were saying to us, the image below shows what people felt was important about their care provision, the bigger the word the more often this was mentioned by people:

We used all of the feedback provided and found we were able to identify key themes which we have developed into two short questionnaires; one for people’s experience of the Continuing Healthcare Process; and one for people’s experience of their Care Provision.

The draft questionnaires are available below:

CHC Process (Standard)

CHC Process (Easy Read)

CHC Care Provision (Standard)

CHC Care Provision (Easy Read)

These questionnaires are being trialed in three CCG areas across Greater Manchester until September 2017.  Once feedback from everyone comes back we will make any changes and present to NHS England so the questionnaires can be used in other areas.

We would be very keen to hear your views and would be grateful of suggestions for improvement. Please contact